A helpful guide along the
SMA Trail.

Supporting SMA Organizations and groups

The following links are to organizations and groups that have assisted families along their SMA journey.   

Jadon's Hope Foundation-strives to promote educational awareness and fund research efforts for Spinal Muscular Atrophy, the #1 genetic killer of infants under the age of two, while also providing support for families affected by terminal childhood diseases.


Getty Owl Foundation-Getty Owl Foundation is a 501(c)(3) nonprofit organization whose mission is helping families and fighting Spinal Muscular Atrophy (SMA).


The Gwendolyn Strong Foundation- is a nonprofit organization dedicated to increasing global awareness of Spinal Muscular Atrophy (SMA), the #1 genetic killer of young children, accelerating research focused on ending this cruel disease, and supporting families impacted by SMA and other life-altering conditions. The GSF is an all volunteer organization, meaning 100% of your donation goes toward fulfilling our mission.


SMAspace-strives to provide you with access to community tools such as Forums, Blogs, Live Chat, and integration with other social media sites you might be using.


Miracle for Madison & Friends (MFM&F)-is dedicated to raising money to help OSU researchers find a cure for Spinal Muscular Atrophy (SMA). This website is packed with information on SMA, including ways to help find a cure, updates on research, merchandise to show your support as well as pictures and stories about Madison and her many friends.